Patient (or disease) registries can play a crucial role in providing a real-world picture of a disease or medical condition.
Patients and researchers have long been using registries to help build communities and to drive the need for more research within a particular disease area or patient population.
The availability of real-world data in registries has the potential to improve quality of life, update treatment guidelines and enhance patient safety.
So why are they not being adopted widely? What are the current challenges researchers face with developing and maintaining effective patient registries? How can technology play a role to improve the quality of patient registries today?
Our latest blog explores these questions and how researchers can make patient registries an integral part of advancing standard of care.